DMRF Canada: 
December 2021 E-newsletter
 
Season Greetings! As we near the end of 2021, and with 2022 right around the corner, the dystonia community has accomplished a lot this year - and there is more yet to come! 
 
To the persons with dystonia and their families - You persevered through the uncertainties, delayed appointments, and physical and emotional challenges that resulted from the pandemic. And for powering through that, we are proud of you and are grateful for your strength and courage. 
 
We would like to thank everyone who supported us throughout the year, including medical professionals, our corporate partners (Merz Therapeutics, AbbVie Canada, Ipsen Canada, and Boston Scientific), our dedicated 2021 interns and over 50 volunteers. Click here to see what you made possible this year. 
 
On behalf of the Board of Directors and staff at DMRF Canada,
we wish you and your loved ones a happy holiday season!
 
 
Table of Contents
 
 
Give the Gift of Research - Time is Running Out 
 
 
If you haven’t made your 2021 gift yet, please consider giving the gift of research by donating to DMRF Canada. Donate online by December 31, 2021 to receive your 2021 charitable tax receipt.
 
Thank you for supporting our fundraising efforts this year!  
 
          
 
Thank you to everyone who made contributions through #GivingTuesday and bidding for Lynn Johnstons' artwork auction. 
 
Cyber Safety: How to Evaluate and Use Information Online 
 
 
Our website remains a trusted source for dystonia-related information. Click here for some useful resources to help the dystonia community stay safe while navigating the online world.
 
Connect with DMRF Canada 
 
 
 
Stay up to date on the latest research news, upcoming patient support events and more! Visit: www.dystoniacanada.org/support-us-find-us-social
 
A Few Days Left to 'Do it for Dystonia' in 2021 
 
 
Our Do it for Dystonia 2021 Campaign has been a great success so far – and there's still time left to get involved! If you would like to get involved and "Do it for Dystonia" in 2021, click here to learn more about the campaign and start your own fundraiser today. A heartfelt thanks to everyone who has participated so far.
We Raised Dystonia Awareness Together 
 
 
DMRF Canada would like to thank you for your support during #DystoniaAwarenessMonth. We were able to connect with over 20,000 people! Click here to learn more.
 
Dyfy the Storm Podcast  
 
 
Ironwoman athlete and Dystonia Thriver Casey Kidson has launched a new podcast, Dyfy The Storm, featuring conversations with people from the dystonia community. Click here to listen.
 
Register Today - Living with Dystonia: Blepharospasm/Meige's Syndrome Webinar 
 
Presented by Dr. Sylvain Chouinard, on January 26, 2022 at 4:00pm Eastern Time.
 
 
Special thanks to the Benign Essential Blepharospasm Canadian Research Foundation (BEBCRF) for their support
 
Accepting Applications: 2022 Jackson Mooney Patient Grant 
 
The Jackson Mooney Patient Grant is accepting letters of intent until April 29, 2022.
 
Click here to read more about the application process and requirements.
 

 
More Than Twisting: 
An In-Depth Look at the Non-Motor Symptoms of Dystonia 
 
Webinar Recording is Now Online

 Thank you to Dr. Davide Martino for presenting on this very important topic.
 
 Access the recording and get the slideshow here.
 
Volunteers Needed for Calgary Casino 
 
 
Calling volunteers to help staff the DMRF Calgary Casino on January 13 and 14, 2022! 

We are looking for 14 volunteers to fulfill our requirements. The Thursday Night shift is the most difficult to fill. Each volunteer contributes the equivalent of $2,000.00 for dystonia research and support programs. For more information and to sign up, please email Jamie Myers at info@dystoniacanada.org. Thank you for your support!
 
Resources for Self-Care 
 
 
DMRF Canada has compiled a list of resources to help you take care of yourself. Visit our COVID-19 Resource Page and our Mental Health Support Resources page. 
 
Additionally, the South Lake Regional Health Care Centre and the Center for Innovation in Peer Support (Support and Housing-Halton) both continue to vital virtual services free of charge. Click here to learn more.
 
Recent Webinars and Information Sessions - Recordings Available 
 
  • Two DBS-focused webinars recorded November 3 and December 8 are now available. These helpful sessions were hosted by the Movement Disorders Clinic at Toronto Western Hospital.
  • Virtual Dystonia Educational Symposium, which was hosted by DMRF (US) on November 13 is now available.
 
Upcoming Support Group Meetings 
 

 
DMRF Canada is proud to connect patients with support groups around the country. Click here to find a support group in your area.
 

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