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Going Forward: DMRF Canada August 2019 E-Newsletter
Table of Contents
 
 
Create your own fundraising campaign 
 
You can do your part to raise funds for dystonia research and support programs. Set up a page to honour someone you love, celebrate a birthday, wedding or new baby,or in honor of Dystonia Awareness Month!​
 
 
Supporting World Class Dystonia Research
 
DMRF Canada is pleased and proud the share some of the latest DMRF research news available here.
 
Order your dystonia alert bracelet today!  
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Chucks Run 2019
Vancouver Dystonia Symposium November 2, 2019  
 
Join the Dystonia Medical Research Foundation (DMRF) Canada, and the Vancouver Dystonia Support Group for a full day symposium that will be focused on how you can live well with dystonia.. This FREE event will include seminars and information sessions for dystonia patients, caregivers, and allied health professionals.
 
Click here for more details and to register. 
 
Special thanks to our generous partners:
 
                                         
 
September is Dystonia Awareness Month!  
 
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Dystonia Awareness Month will be here before you know it! It's never too early to sign up to become a dystonia ambassador. If you'd like to get involved in helping to raise awareness of dystonia in your community during the month of September click here to learn how. 
 
 
 
Are Your Dystonia Symptoms Under Control? Take the Dystonia Wellness Checklist
  
DMRF Canada is committed to helping you live your best life with dystonia.  The next time you are visiting your movement disorder specialist, look out for the DMRF Canada Dystonia Wellness Checklist. This is a short test that asks questions about your well being to identify areas where you may need additional support.
 
For further information about living well with dystonia and to register this survey online for a chance to win a VISA gift card, visit: www.dystoniacanada.org/livingwell
Survey ends on September 30, 2019
 
Join Us for the Manitoba Dystonia Information Session  
 
The Manitoba Dystonia Support Group is organizing a very special Information session open to the public. 
Special guests include Dr. Hobson of the Movement Disorder Clinic, in Winnipeg, who will speak about the medical management of dystonia symptoms. DMRF Canada Executive Director Stefanie Ince will be providing news from the Foundation, details on support materials available for patients and loved ones, and updates on the latest research funded by the Foundation. 
For more information about the session click here
 
 
Jackson Mooney Patient Grant Recipients 
 
The Jackson Mooney Dystonia Patient Grant was established to provide financial assistance of up to $5,000.00 for Canadian residents who are living with dystonia, in financial need and committed to enhancing their current situation through furthering their education. 
 
This year, the grant committee was pleased to announce funding for education to two worthy candidates: Hannah Schell (from Halifax, NS) and Kaylee Row (from Beaumont, AB).  Congratulations to these recipients with our sincere thanks to our grant sponsor. Click here to learn more about this year’s award recipients.  
 
We are now accepting applications for 2020. To learn more about the eligibility criteria, click here
 
DMRF Science Report 2019: Promise and Progress
 
We’re pleased to share the annual science report of the Dystonia Medical Research Foundation 2019
 
The Promise and Progress Report  provides details on some of the outstanding dystonia research developments that are currently underway, thanks to the support of our generous partners and donors.
 
 
 Dystonia Community Mourns the Loss of Grace Medland
 
DMRF Canada was saddened to hear about the passing of one of the Toronto Support Group’s members, and long time dystonia advocate and supporter, Grace Medland, after a courageous battle with cancer. Memorial donations in honor of Grace can be made to Guide Dogs Canada or DMRF Canada. Please click here to view the obituary and send a condolence message. On behalf of the DMRF Toronto Support Group, and the staff at volunteers and DMRF Canada, we offer Grace’s family our deepest condolences.
 
 
DMRF Call for Applications: Basic and Clinical Aspects of Dystonia 
 
The Dystonia Medical Research Foundation is pleased to announce a Call for Applications for research proposals on Clinical and Basic Aspects of Dystonia.
Letters of Intent are due by end of day on Monday, September 9.
Click here to know more.
Upcoming Support Group Meetings
 
DMRF Canada is proud to connect patients with support groups around the country. Click here to find a group near you.
 
 
Upcoming Events
 
Calgary Casino, August 11th - 12th, 2019 
Dystonia Awareness Month, September 2019
Chronic Pain Self Management Workshops, September 14 to October 19, 2019
 
For more updates follow us on: 
 
       
 

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